Children’s Cancer Association has traveled an incredible road in its thirty years. As we honor this milestone, we know that we as an organization are here today because of the steadfast support of our community.

It takes more than one person to light the way, and we’re grateful to all the people with whom we’ve had the honor to share this journey, a constellation of luminous individuals who have helped tens of thousands of sick children nationwide feel like kids again through transformative moments of joy.

In recognition of our thirtieth anniversary, we are thrilled to showcase, celebrate, and highlight the JoyRx Luminaries who light this path.

These individuals are lifelong friends, steadfast supporters, dedicated staff members, heroic and passionate influencers in the community, unrelenting volunteers, and — in the end — true Joy Makers.

Join us each day in September, Childhood Cancer Awareness Month, as we honor these JoyRx Luminaries and their service to Children’s Cancer Association.

This page will be updated daily with a new Luminary to celebrate.

October 2:
Kacy Smerke

Kacy Smerke has worked for Children’s Cancer Association for nearly two decades. Starting as an intern, today she’s our Director of Programs for the PNW region, leading JoyRx Music, Mentorship, and Nature in the region.

As a true champion for the children we serve and a mission-oriented colleague, she is affectionately referred to as the JoyRx Historian by our staff due to her extensive, deep knowledge of our past and her incredible commitment to the organization.

It’s often that she’ll pass by a desk, spot a photo from ten years ago, and recognize the child, their name, and share what they’re doing now. Her profound care and dedication to children and families throughout the Pacific Northwest are clear in every detail of her work, and we are so incredibly grateful to have her as our Director of Programs.

For Kacy, it’s easy to continue working for Children’s Cancer Association:

“I believe in the power of our programs and have seen firsthand the difference that they make for kids, families, and our community,” she said. “I have been at Children’s Cancer Association for my entire career and have been truly honored to grow as a person and professional by being a part of JoyRx programs. I love the variety within my role – I get to work with inspiring patients, families, and volunteers from all backgrounds, an incredible team, and dedicated hospital staff and donors – many of whom have become lifelong friends.”

It's difficult to emphasize the impact Kacy has made on our organization. With her extensive knowledge, abundant empathy, and dedication to the mission, she’s had an influence in all departments, all regions, and what feels like every aspect of Children’s Cancer Association.

As such a champion for JoyRx Mentorship, we asked Kacy about her most impactful mentor. Here’s what she had to say:

“I have had many impactful mentors in my life, but the person who stands out to me is Kathy Perko. She was a pediatric nurse for her entire career and founded the Bridges Pediatric Palliative Care Program at Doernbecher, which she directed until her retirement in 2020. She taught me so much about how to work with families during what are often the hardest moments of their lives, while maintaining a life outside of work and a sense of humor, and how to carry the memory of kids that die that we have worked with. I will forever be grateful for what she contributed to Children’s Cancer Association, to so many families, and to me personally.”

In many ways, we see that care reflected in Kacy’s leadership, too. As our Director of Programs, she is dedicated to bringing joy to families and to celebrating the lives that were lost far too soon. She is steadfast, compassionate, relentless, and attentive to our families and children served.

As a colleague and friend, Kacy is a true mentor to us all.

“Kacy has been an incredible mentor to me since the day I started,” said Elke Downer, JoyRx Music Senior Manager. “Her support, guidance, empathy, and wealth of experience have shaped my growth in countless ways. She has been a steady foundation for our organization, and I feel truly grateful to have her as a colleague.”

“Kacy’s seventeen years reflect her heart, dedication, and belief in our mission. Her compassion, loyalty, and belief in the power of joy have touched every corner of our organization and community,” said Amy Raupp, Senior Executive Assistant to the CEO & Administrative Manager.

“Kacy is literally the reason I am here,” said Eileen Shattuck, Senior Accounting Coordinator. “It was over ten years ago that I was thinking of becoming a JoyRx Mentor, but I didn’t know if I could do it. At an event, Kacy said, ‘I bet you could, and I bet you’d be great at it.’ I was a mentor for three years before I ended up joining the staff.”

“As a newer staff member, Kacy helped me understand the depth of our history and community impact in a singular and really inspiring way,” said Andrea Tichy, Senior Director of Brand Marketing and Communications. “She is the kind of person whose care and thoughtfulness ends up making the entire team care more and be more thoughtful. Kacy is a gem!”

“Kacy has an amazing superpower to break technology. If there’s a flaw in the system, Kacy’s going to find it. She’s my canary in the coal mine,” Joe Williams, Director of IT & Facilities, said jokingly. “But, she’s also amazingly resilient, able to troubleshoot and work around problems herself, all while maintaining a supportive and positive attitude. She’s a delight to work with. She’s the best ever.”

“Something I am sure most of us at Children’s Cancer Association will say about Kacy is that, work-wise, she is a wealth of knowledge and a person everyone relies on for crucial insight, having given so much to this work and our kiddos for almost two decades,” said Tess Patterson, Volunteer Coordinator. “What I think is one of the most wonderful things about Kacy, though, is that she is a trusted and steadfast friend and mentor to countless people. She always makes time for you if you need it (even when she has a thousand other things that require her attention), and you can be sure that she will treat you with care, respect, and honesty. I am lucky to know her.”

“There are few leaders who exemplify the mission of Children’s Cancer Association as Kacy does,” said Maura Boyce, Vice President of Programs. “In my nearly ten years working with her, I have seen her year after year go above and beyond to support kids and families, and her team. If Kacy sees an opportunity to help another, she does not hesitate to make it happen. Her compassion and empathy for others offer a model for all leaders.”

“Kacy, for over seventeen years, you have poured your heart into bringing joy and care to children and families facing the hardest moments of their lives,” said Regina Ellis, our co-founder and Chief Joy Officer. “From your very first days as a master’s intern to leading programs and shaping mission impact, your dedication has been a gift beyond measure. We celebrate not only your service, but the love, compassion, and legacy you’ve built.”

“It’s impossible to measure the magnitude of impact Kacy has created for Children’s Cancer Association and the thousands of kids she’s helped serve with JoyRx programs over her career,” said Jack Pipkin, Chief Executive Officer. “She is compassionate, dedicated, collaborative, and at the very heart of what makes our community great.”

We couldn’t agree more. We are all so lucky to know you, Kacy. Thank you for being a true Luminary for this organization.

*Kacy with her mentee Amber at the 2008 Get Inspired Luncheon (photo courtesy of Children’s Cancer Association)*

October 1:
Ed Burke

In 2011, Ed Burke was at home often due to undergoing cancer treatment. One day, while he was on the couch, he started watching the annual telethon fundraiser for Children’s Cancer Association.

“I’d never heard of JoyRx programs before,” he said. “But as I learned more about the Mentorship program, I was inspired.”

And the rest was history. As someone who had survived cancer treatment, he wanted to help others and become a JoyRx Mentor. Since 2012, Ed has been just that: an extraordinary mentor, creating meaningful friendships with children while contributing nearly 1,000 volunteer hours (and counting!) in his thirteen years with us.

As a father often involved in his children’s sports and other activities, Ed knows how to help. He dedicates his time and energy to helping sick kids feel like kids again through fun activities, toy bags filled with goodies, and offering trusted friendship and connection during lengthy hospitalizations.

It’s been a meaningful chapter in Ed’s life.

“Of course, I have amazing memories with each child I was matched with,” he said. “I have so many great stories and memories of each kid; I could easily talk for hours about each one.”

As a mentor of several different mentees, Ed knows how vital and unique friendship is for each child.

“It’s different with every kid,” he explained. “Sometimes there are matches where they instantly gel, and then there are others that take a while to warm up. Each one is unique and rewarding in its own way.”

“My goal as a mentor is to just make a couple of hours a little better,” he said. “Even if it’s just sitting around.”

Either way, Ed’s dedication to volunteering and making each day a little brighter for the children he’s matched with makes all the difference in the world.

“Ed is a dream volunteer not only for us, but for many other worthy causes in the area,” said Kacy Smerke, Director of Programs, PNW. “He is dependable, selfless, and genuinely kind – all needed attributes in a JoyRx Mentor. He is unwavering in his commitment to helping kids and can build rapport with any child and family we match him with. Not only is he a luminary for us as an organization, but also for the 12 families with whom he has been matched since 2013. We couldn’t do this without you, Ed!”

Ed: You are a true bright light in the constellation of JoyRx Luminaries. We are so grateful to have such wonderful volunteers, like you, who let us become such a meaningful part of your life. The joy you share with your mentors is a shining example of what matters most.

*Ed and one of his mentees, Random. (Photo courtesy of Children’s Cancer Association)*

September 30:
The Standard & Bob Speltz

Twenty-seven years. That’s how long Children’s Cancer Association has partnered with The Standard in creating a culture of care. In those twenty-seven years of our thirty years as an organization, The Standard has stood as a steadfast partner: providing a pipeline for volunteerism, leadership, corporate sponsorship, and more.

At the center of that partnership is Bob Speltz, Executive Director of The Standard Charitable Foundation and Senior Director of Community Relations, who has been a stalwart pillar for Children’s Cancer Association.

The Standard says on their website: “In 1906, when Leo Samuel founded the company that would become The Standard, he had two radical — at least for the time — ideas for business: it should provide local services for customers and it should contribute to the well-being of the community.”

And truly, that dedication to community guides their work. With an emphasis on supporting organizations that foster healthy community, empowerment in disability, cultural development, and arts, education and advancement, The Standard has truly — well — set the standard for integrity, commitment, and philanthropy in our region.

That support manifests itself in several ways. The Standard has implemented multichannel fundraising within the company, including sponsoring events, matching employee giving, hosting volunteer expos, and more.

“Caring for people is more than a core value,” said Bob. “It’s practiced every day… It’s how we make a real difference in the communities we call home.”

This year, we’re thrilled to have The Standard as our presenting sponsor for our 30th Anniversary Gala, where we’ll also honor our JoyRx Luminaries. As longtime supporters, we can’t think of a better way to celebrate our impactful partnership than with this important milestone.

We are grateful to celebrate The Standard’s leadership as we come together to raise critical funds for JoyRx programs and the children and families who need them.

*Guests at our annual gala in 2023 raise their bidder cards for the live auction, sponsored by The Standard (photo courtesy of Children’s Cancer Association)*

September 29:
Paul & Tasca Gulick

We are so grateful for this family of Luminaries. Paul, Tasca, and Dylan Gulick are a family of philanthropists and champions, working together to create real change and real momentum with our JoyRx programs.

And that real change and momentum is a big deal! The Gulick family is deeply integrated into our leadership; Paul has been one of our longest-standing board members and serves on our finance committee and executive committee.

In addition to Paul’s board service, the Gulick family has offered support to the Children’s Cancer Association in other ways — including the incredibly transformational donation of the property on which we built the Alexandra Ellis Caring Cabin.

“They are friends, they are mentors, they are champions,” said Regina Ellis, our co-founder.

In their day-to-day, Paul and Tasca know the importance of finding joy in mentorship and nature. It’s one of the many reasons why they’re such champions of our programs.

“My mother was my inspiration and the person who showed me how to have confidence,” said Paul, when asked about his most impactful mentor. “She taught me how to think and act with kindness and compassion, and to try to be generous to a fault.”

“My favorite place in nature is my garden,” said Tasca. “It calms my mind and reminds me of how fortunate we are to live here.”

It’s through those learnings that the Caring Cabin came to be — for the love of a mother’s mentorship and a garden’s peaceful splendor. That, and they find joy in being with their family.

What stronger foundation upon which to create something truly generous and calming for families that need it most?: The Caring Cabin is a place of peace for families to gather, create cherished memories, and truly connect. In the end, that embodies everything that the Gulick family treasures.

So it’s no wonder that Paul and Tasca share their support with such palpable joy.

“We support Children’s Cancer Association because it’s a great organization that’s doing really great work,” said Paul. “We know every dollar is used to help make someone’s difficult day a bit brighter.”

For the Gulick family, it’s truly as simple as that.

*Regina Ellis with Dylan, Tasca, and Paul Gulick at our annual gala in 2009 (photo courtesy of Children's Cancer Association)*

September 28: Kristin DuVal

As a JoyRx Mentor, longtime volunteer, generous supporter, and member of the PNW Leadership Council, Kristin DuVal knows the importance of our work at Children’s Cancer Association. Generously providing her time and resources, Kristin has inspired community, action, and joy for decades.

“When I first heard Regina speak at an event in 2003, I was awestruck,” she said. “I had no concept of what it may be like for a child to be isolated in the hospital with a scary diagnosis, and no idea what the non-obvious challenges the child’s family may be experiencing — like isolation and overwhelm. I wanted to spread the word about Children’s Cancer Association immediately. And I did!”

“Kristin is committed in her daily life and in her belief that the world is a better place when we all come together,” said Regina Ellis, our co-founder. “She is a tireless advocate. She is a kind and gentle human being. She is funny. She has a beautiful laugh.”

And Kristin is always quick to share that kindness, humor, and great laugh as part of JoyRx Mentorship. Not only has she been a mentor for hospitalized children, but she was also the chair of the 100 Mentorship Match initiative we launched this year, a fundraiser aimed at funding all JoyRx Mentorship matches for the full calendar year.

“She’s so inspiring,” said Regina. “She truly believes in the power of getting involved.”

It isn’t just JoyRx Mentorship that Kristin supports. While that program holds her heart, her generosity extends to JoyRx programs past and present. In the past, she supported (now sunsetted) programs and initiatives such as Joy for the Holidays and the Link Program, created to help provide support to families throughout the region.

“As many will say about Children’s Cancer Association, I have gotten more out of volunteering than perhaps I’ve given,” she said (very humbly, we might add). “I am honored to be able to support them. Every single time I engage with Children’s Cancer Association, I leave even more inspired.”

Kristin has dedicated years to volunteering at Children’s Cancer Association and committed tens of thousands of dollars to JoyRx programs through fundraising initiatives, peer outreach, and events.

Kristin is committed to continuing the legacy, too. Her son volunteers for Children’s Cancer Association through his high school.

“After I returned from an event, he said, ‘Mom, please find other opportunities for me to get involved,’” she said. “I felt so proud.”

*Advocate, former ambassador board member, and JoyRx Mentor Kristin DuVal (photo courtesy of Children's Cancer Association)*

September 27:
Jeff Owens

“Jeff Owens is the true definition of a philanthropist,” said our founder, Regina Ellis, when asked to describe this Luminary.

In Regina’s words, there is a difference between a generous person and a philanthropist. And in her mind, Jeff is the perfect example of what a philanthropist is: a community activist, a generous supporter, and one who always offers a hand with an open heart.

Serving on our board from 2006 to 2013, Jeff combined his passion for Children’s Cancer Association’s mission with his incredible philanthropy and business acumen, making him an inspiring leader for our organization. As a champion donor, Jeff connects his network with our mission - often through his willingness to share his own family’s experiences with serious illness. In these ways, and more, he has become a transformational force for Children’s Cancer Association.

“I met Jeff in the hallway outside of his daughter’s room in the hospital,” said Regina. “And what struck me most was — he believed. He saw the ache of a child having cancer, seeing that child relapse. He knows the rigor and fear and exhaustion and toll. That’s why he became a warrior for Children’s Cancer Association.”

Jeff remembers that day, too. When his daughter, Melissa, was diagnosed with Hodgkin's Lymphoma in 1999, Jeff met Regina and, soon after, was served by JoyRx programs.

“It meant the world to us at the time,” he said. “We have very special memories from those visits.”

Since that fateful day in the hospital, Jeff has been an avid supporter of our programs. His fundraising efforts helped us launch our JoyRx Nature program, which has served over 700 families to date.

At the time we secured funding for the new program, we were a small organization with an operating budget of only around $300,000; large individual gifts were not a common occurrence. Jeff was one of the first supporters of the Alexandra Ellis Caring Cabin, contributing $10,000 initially and inspiring his personal and professional network to do the same.

Through the Owens family’s generous and dedicated philanthropy, Jeff remains central in our circle of leadership giving. Over the course of his over 20 years of service with our organization, he has inspired others to join him, raising nearly one million dollars to ensure that thousands of seriously ill children and their family members can access our no-cost JoyRx programs throughout their cancer journey.

And at the end of the day, what brings him the most joy?

“My grand babies, of course,” he said with a smile.

*Jeff and Malia Owens host a Joy Party with friends and family in 2017 (photo courtesy of Children’s Cancer Association)*

September 26:
Karis Stoudamire-Phillips

As one of our longest-serving members of the PNW Leadership Council, Karis Stoudamire-Phillips understands the power of individuals to create meaningful change.

The Vice President of DEI and Community Initiatives at Moda Health and Delta Dental of Oregon, Karis focuses on developing, directing, and implementing community engagement strategies and action plans to increase diversity, equity, and inclusion in work and corporate culture.

She brings that expertise and experience to Children’s Cancer Association, serving on our culture and ethics committee, and championing all voices to be heard in all aspects of our organization. She drives meaningful change, particularly in overcoming inequities in care in healthcare organizations — one of the many reasons why she lends her strength and skills to Children’s Cancer Association.

“The simple goal to provide opportunities for joy for children experiencing serious health challenges and also offering parents and caretakers of those children opportunities for respite for both mind and body sparked my interest and grabbed my heart,” she said when asked why she supports us. “I had to get involved!”

Karis is an active, steadfast member of the Portland community, too. In addition to serving on our Leadership Council, she also serves as Chair of the Multnomah Exposition Recreation Commissioner, Boise Neighborhood Association Treasurer, De La Salle North Catholic High School Board, Grantmakers of Oregon and Southwest Washington board, Oregon Community Foundation Metro Leadership Council, Portland Rose Festival Foundation board of directors, St. Mary’s Academy board, and other civic organizations.

As a member of the PNW Leadership Council, Karis lends her experience and network to help better our organization. In addition to her DEI work and insights on how to strengthen our organization, Karis is also generous in providing new opportunities for families and in fundraising initiatives.

“Of course, I had to get Moda involved! It just made perfect sense!” she said. “Moda is far more than just a health insurer, paying claims. We are partners with our members on their health journeys. We want to be a resource, especially during challenging times.”

Thanks to Karis’s work at Moda and with the Portland Trail Blazers, she has donated suites for concerts to our auctions and provided tickets for our served families to enjoy game after game. As you can imagine, getting to see a game up close and in person is an exciting opportunity for JoyRx-served kids.

For Karis, philanthropy is a necessary aspect of filling the gaps in healthcare — and why our programs, being no-cost to families and accessible regardless of diagnosis, are so important.

And what brings Karis the most joy? She said:

“My family – the fruits of my labor. My husband, Mike Phillips, and I work hard to provide for our family, and seeing our children flourish brings me pure joy! I also find joy in my work. My favorite dean from undergrad, Dean Tom Brown, told me that when you find a job that you truly love, you feel like you never work a day in your life. I feel that, and I am so grateful to have been blessed with the career that I have worked to cultivate. No, every day is not easy, and there are some very challenging times, but my work is truly heart work, and giving of my heart makes my heart happy. Ultimately, spending time with my family and friends brings me immense joy! I get excited and just giddy as I prepare to spend time with family and friends!”

Karis, thank you for your generous heart — we are so grateful for your leadership, kindness, and spirit.

*Karis Stoudamire-Phillips and her husband, Mike Phillips (photo courtesy of Karis Stoudamire-Phillips)*

September 25:
Gay Davis

There have been many friends of Children’s Cancer Association in our thirty years, but we have a special place in our (purple) hearts for Gay Davis.

As the founder of the Golf for Joy Tournament, one of our longest-running, most beloved events, Gay has dedicated time, energy, and passion to ensuring that critically ill children have access to our joy-based programs. In this way, Gay is truly a North Star luminary for Children’s Cancer Association.

He has brought so many incredible people and connections into the world of Children’s Cancer Association. Every time we look around the tables at Golf for Joy and see the sea of new friends, longtime supporters, and the generous golf community, we know that transformational impact is because of him.

“Nothing tugs at my heartstrings more than a child with cancer,” said Gay. “It’s just not a fair fight.”

That generous heart is always on display when it comes to planning the tournament. What started as a one-man enterprise in its early days has blossomed into a signature cornerstone event for our organization. Born from Gay’s two greatest passions — golfing and helping kids — it has come a long way in fifteen years.

In the beginning years, Gay’s Golf for Joy emphasized his show of endurance, in which he’d conduct a golf marathon in support of the children we serve. He’d golf over one hundred holes, walking or jogging over dozens of miles, all in one day.

Today, golf enthusiasts from across the nation come together to celebrate joy during this exclusive two-day tournament in the Pacific Northwest, with all funds raised going directly to our JoyRx programs.

To date, Gay’s golf events have raised over $5MM to support our mission, with $1MM of that coming from this year’s Fifteenth Annual Golf for Joy tournament in June. The tournament has also grown with the organization to Austin, Texas, where it continues to build a new regional legacy, too.

“Gay’s dedication to helping kids and families facing devastating diagnoses is unmatched,” said Regina Ellis, our co-founder. “We are humbled and inspired by the Davis family’s compassion and generosity — we are so honored to call them our dear friends.”

The simple yet radical act of finding joy even during difficult times resonates with Gay, motivating him to continue giving back to children in need of connection. And the contributions that have resulted from his Golf For Joy activities equate to funding 514 weeks of JoyRx Music — nearly ten years of uninterrupted music medicine.

Gay is a shining example of a Luminary, utilizing his passion to accomplish something truly amazing. Thank you, Gay, for everything you do to provide joy to those who need it most.

*Gay Davis with JoyRx-served Sol on the Golf for Joy green in 2019 (photo courtesy of Children’s Cancer Association)*

September 24:
Bill Grange

Bill Grange is a delight to be around. He’s friendly, welcoming, and outgoing. These characteristics have made him a great JoyRx Mentor for Children’s Cancer Association — and why he’s such a stellar Luminary.

Bill first started volunteering with Children’s Cancer Association in 2006 after seeing a billboard inviting more volunteers to get involved. A beloved schoolteacher at the time and father of two daughters, Bill wanted to demonstrate the power and importance of volunteerism to his family and community.

Since his first mentorship match in 2007, Bill has become a mentor extraordinaire, having become friends with many seriously ill children over the years through JoyRx Mentorship.

Bill’s determination to give back goes beyond creating lasting friendships with his mentees, of course. He also volunteers his time through our events, peer-to-peer fundraising activities, as well as speaking at volunteer trainings and orientation meetings to encourage others to become mentors.

“I’ve experienced firsthand the impact and joy Children’s Cancer Association brings to kiddos facing life-threatening illnesses,” said Bill. “There is nothing more inspiring than to see a laugh, giggle, and smile emanate from these children by way of music and friendship while they’re going through treatment.”

Bill’s no stranger to that reality, either. During his time as a mentor, he’s seen the fun times and the difficult moments. Families who have worked with Bill through JoyRx Mentorship often praise him as someone who can offer empathy without pity. He’s able to handle challenges with ease, analyzing a situation to help him strike a balance, giving families the space they need while also ensuring they feel connected.

“Bill is always cheerful and positive, even in times of grief,” said one family member. “He is creative and gifted, patient and loving, with a kind and open heart. The more you know him, the more you realize how giving he can be. He is a joy to spend time with.”

As can happen with JoyRx Mentorship matches, Bill has formed and maintained great connections with most his mentees and their families, even once the match has “graduated.”

Bill goes above and beyond program requirements to participate in community activities with the children he has been matched with. These activities include bowling, Blazer games, board games, and dining out. Bill has helped these children and families find stability, direction, and distraction from medical treatment.

This genuine devotion is what makes Bill such a gift to our organization.

So, who does this superstar mentor see as his most impactful mentor? “My older brothers,” he said. “My dad passed away when I was eight years old, and my older brothers helped fill in the gaps by guiding me through my formative years. I’m forever grateful!”

When he isn’t jamming out to the Beatles or enjoying time in nature along the Pacific Coast or the Rocky Mountains, what brings him the most joy?

“Playing my guitar and listening to music,” he said. “Travel. Hearing children’s laughter. Spending time with family and my new granddaughter. Sharing a meal with friends.”

We are deeply grateful for Bill’s kindness and generosity, as he devotes his time to helping sick kids feel like kids again — not just patients. It’s his cheerful spirit and big heart that make him such an inspiring mentor for so many kids.

*Jordan with his JoyRx Mentor Bill Grange and an awesome balloon 2011 (photo courtesy of Children's Cancer Association)*

September 23:
Tim Cooper

Tim Cooper knows his stuff.

When it comes to the employee benefits industry, healthcare reform, self-insured plans, 401k plans, or alternative funding, he has over thirty-five years of experience under his belt.

“I enjoy building relationships… and finding ways to solve problems in an ever-changing environment,” he said when asked to describe his work.

With such extensive knowledge of the healthcare field and the love of a good challenge, it’s no wonder that he would find his way to Children’s Cancer Association. Inspired by our unique approach to pediatric healthcare and the ever-growing need for our services, Tim saw the ways he could use his skillset to help further our mission.

Tim served as a board member from September 2001 to 2023, an extraordinary tenure and commitment. In those over two decades of work, Tim was a shining light for creating connections with corporate partners, expanding the reach of our programs, and strengthening the service of our program delivery.

It’s no surprise that Tim would be a champion of JoyRx Music, being a great lover of music himself.

“I have too many favorite songs to list,” he said. “My favorite songs remind me of people and time. Tom Petty’s ‘Free Falling’ is for driving to go scuba diving in Pacific City with my buddy Troy in the late 80s and early 90s. Or, The Police’s ‘Roxanne’ is making cookies in Autzen Stadium parking lot (back when it was gravel) before football practice with Jan Cespedes.”

This perfectly captures the importance of music as a form of joy — helping all of us to feel connected and joyful. We know that the power of music to bring personal meaning and unlock big emotions is unique for each person, and patience.

“Jimmy Buffet’s ‘Jolly Man’ is my son Jacob. Darius Rucker’s ‘Wagon Wheel’ is my son Zack,” Tim explains in reflecting on personal emotional music connections. “Buffet’s ‘Little Miss Magic’ is my daughter Kaitlyn. And ‘Remember When’ by Alan Jackson takes me back to our wedding… And the list goes on…”

And, like anyone who has dedicated over two decades to volunteerism and leaderhip at the joy-based organiation, he has a running list for what brings him the most joy:

“Family, friends, exercise, water, beaches, a beer on the backside of the Pelican, seeing kids succeed, concerts, cooking, food, GOOD food, fishing, scuba…”

Pretty good list, we think!

And even after his retirement from the board, he’s remained a dedicated supporter — attending our annual gala, participating in peer-to-peer fundraising initiatives, and more. No matter what the initiative, Tim is there — supporting Children’s Cancer Association.

“Giving back is important,” he said. It’s why he dedicates so much of his time and resources to organizations close to his heart.

“My spouse, Tammy, and I have a strong belief in the mission and amazing impact Children’s Cancer Association has on children and families,” he said. “For thirty years, they have delivered joy — and help so many people. I can’t wait to see their impact in another thirty years!”

We know that we’re poised to have an impactful and joyful next 30 years, Tim, thanks in part to your leadership.

*Grant Hammersley with Tim Cooper at our annual gala in 2014 (photo courtesy of Children's Cancer Association)*

September 22:
Terry & Brooks Newsom

As a family-founded organization, we know what it means to be a force for joy, and that is precisely what the three generations of the Newsoms are. When Grady, Brooks, and Terry Newsom — son, father, and grandfather — band together to help seriously ill children, they are truly a force to be reckoned with.

Brooks and Terry Newsom have each contributed their unique leadership and support in many ways. As steadfast donors and leaders in our golf tournaments and other initiatives, they’ve leveraged their networks to create real change in their community through our joy-based programs. Their combined generosity has also made a leading impact on the ongoing success of our golf fundraising events.

It's understandable, of course, why they’d be so connected with our mission. Grady, after all, was a child served by our programs. Right before his third birthday, he was diagnosed with acute lymphocytic leukemia and faced a three-and-a-half-year treatment plan.

Naturally, it was overwhelming and impacted the whole family.

“We went into fight mode,” said Brooks. With Grady’s treatment, Brooks and his wife, Debbie, were practically living in the hospital, searching for anything that could help Grady with his battle. With two other children at home, Grandpa Terry and Grandma Karen shared instrumental support, adding extra care for Mom, Dad, Grady, and his siblings.

Today, Grady is doing great. He recently transferred to Cal Lutheran University, where he plays on the golf team!

“Because of how long ago it was, I don’t remember everything,” said Grady when recalling his time in treatment at Doernbecher Children’s Hospital. “But I remember that everyone at OHSU made us feel so welcome and provided fun during dark times. I didn’t know it was so bad; I just remember the good moments, now.”

And that’s always been Children’s Cancer Association’s goal: to help kids access the power of joy and remember the good. So, even years later, the Newsoms never forget the impact that time had on their family and the perspective it granted them.

“Day one is the worst,” Brooks said when reflecting on the moment of diagnosis. “As you find out you are dealing with a term that is bad, and there is so much you don’t know. Every day after that, you learn about your enemy and what you are battling.”

As a grandfather, Terry had advice for other grandparents: “It’s different. You’re not the parent, but you can support your child and your grandchild,” he reflected. “I looked at it like this: ‘Have I done anything good today?’ I would see the nurses and doctors, and the positive things they were doing for families with worse outcomes than ours. And it would motivate me — it is really motivating to see them rally around those kids.”

And with that motivation, Terry turned to the community to create real change and real good. As founder and CEO of Pacific Office Automation, Terry Newsom’s leadership, and Brooks’ impact, has included a commitment in the community to help fund, sponsor, and support Children’s Cancer Association, especially through our February Joy Makers campaign.

“I know Children’s Cancer Association is really in there and going through the experience with families,” said Brooks. “The overwhelming support that the families receive, I know how beneficial that is. To be able to give money to something that our family has experienced gives it far greater meaning.”

“Money is simple to give compared to time,” Terry agreed.

Meanwhile, Grady sets a reminder at 9:00 am every day that says, “Remember Your Why.” For him, cancer is part of that why.

“It’s bigger than myself,” he said. He wants to be a role model and a cancer survivor. He wants to thrive. He dreams of being someone kids can look up to — so they can look forward to what’s on the other side. “I want to give back,” he said with a smile. “But I have some work to do first.”

In this fantastic family, there are lovers of both golf and philanthropy, and we are so honored to have them on our side, championing joy in the lives of seriously ill children.

“Have I done anything good today?” the Newsoms ask themselves, and we here at Children’s Cancer Association say a resounding YES.

*Three generations of the Newsom family share their support at Golf for Joy 2023 alongside their team (photo courtesy of Children's Cancer Association)*

September 21:
Ashley & Matt McMullen

“Ashley and Matt are a quiet force of good,” said our co-founder, Regina Ellis, when asked about the McMullens.

And it’s an apt way to describe Ashley and Matt McMullen. Because of the work they’ve done behind-the-scenes, it might be easy to miss the profound impact they’ve had on Children’s Cancer Association. But like true Luminaries, their brilliance matters most in the quiet ways it reaches others.

As supporters of Children’s Cancer Association, they have answered the call and served as JoyRx Mentors, PNW Leadership Council Members, and participated in "Cats & Dogs” employee fundraising competitions at Nike in support of JoyRx programs. They have volunteered at numerous opportunities over the years, such as our annual gala or mentorship-hosted events, and served as unofficial spokespeople for JoyRx programs, championing others to learn more about our programs. Through their efforts, we’ve met hundreds of new friends and volunteers.

They both truly value their time as mentors, too. When they attended a support and education night in 2008, they knew they had to get involved.

*Matt and Ashley McMullen at our annual gala in 2012 (photo courtesy of Children's Cancer Association)*

Ashley says that what really hooked her on Children’s Cancer Association was “the selfless dedication and enthusiasm of the staff, volunteers, and families. Everyone who works with JoyRx programs is committed to doing all that they can to fulfill the mission of providing joy to our kiddos — and that is simply inspiring. I’ve never met a more energetic, creative, and welcoming group of people.”

“They are tireless,” said Regina. “They continue to support us even amid busy careers and raising children. They continue to invest as leaders and are full-force advocates for joy.”

It’s true that they are steadfast in their support, volunteering at events or as mentors, and helping to found leadership councils. Ashley was one of the founding members of the Young Professionals Council (then called Joy Squad) and serves today on our PNW Leadership Council (having joined in 2018).

“We support Children’s Cancer Association because no child or family should have to go through cancer alone,” Matt said. “What inspires us most is how Children’s Cancer Association focuses on delivering joy, music, and moments of light to families in the middle of such hard times.”

Additionally, they are champions of our events, and influential hosts at our annual fundraising galas. As dedicated advocates and engaged supporters, they’re ready to say yes to all kinds of initiatives, such as our Day of Joy campaign in February and our Ticket to Joy car raffle.

“Truly, they are beautiful people,” said Regina. “Inside and out.”

We couldn’t have put it better, Regina. Thank you, Ashley and Matt, for your unrelenting support.

September 20:
Ron Penner-Ash

Ron Penner-Ash is a true hero to Children’s Cancer Association. He served on our Board of Directors for eight years, joining on the recommendation of a good friend and past board member. His love of music and experience fighting prostate cancer were major motivators for him.

“It was obvious to me at my initial meeting with staff that Children’s Cancer Association was uniquely positioned to make a difference in pediatric health care,” he said.

Beyond the warmth and intelligence of the staff, as he describes it, he feels passionate about discussing the transformational power of joy and music in the healing process with people.

“Every human on this planet can relate to the visceral experience of beat, rhythm, and song… It’s core to our existence and transcends cultures,” he said. “People easily relate and are willing to share their own personal experiences and articulate how joy was a significant factor in their healing process.”

As a great lover of music, it’s no surprise that Ron would feel inspired to support Children’s Cancer Association and our JoyRx Music program.

“My music tastes are broad and varied,” he said. “I’m constantly on the lookout for new music and artists. It certainly helps having a daughter who’s an aspiring multi-instrumentalist musician based out of Santa Fe who loves sharing music with her dad.”

If pressed, however, he could name a current favorite: “Two current favorites are Bonny Light Horseman, led by the brilliant songwriting of Anaise Mitchell (Hadestown) and Hermanos Gutierrez, two brothers weaving intricate Latin-influenced guitar lines over a psychedelic vibe. Both groups produce reflective, soulful music appropriately timed for a post-pandemic world.”

That love of music was on full display when Ron helped lead a new initiative during SXSW, bringing in the band Mt. Joy (a fitting name for our organization!) to create exclusive performances.

Watch now, Mt. Joy at SXSW 2022:

This fundraising and friend-raising initiative helped raise $20,000 for JoyRx Music and, most importantly, raised awareness for our community.

With his dedicated time on our board, concerted effort to raise awareness in the music community, and personal contributions of hundreds of thousands of dollars, Ron is a fitting example of what it means to be an avid supporter of joy and the impact joy makes.

*Ron Penner-Ash leads the Paddle for Joy fundraising campaign in 2018 (photo courtesy of Ron Penner-Ash)*

September 19:
John Grothe

John Grothe knows the extraordinary power of JoyRx programs firsthand.

At just eighteen months old, John’s son, Colton, started having seizures. What began as a mere eye flutter eventually escalated into five-hour-long episodes and a medically induced coma.

“Facing the real possibility of losing our son, I was full of doubt and fear. I questioned what our future would bring and how I would summon the strength to face every day,” he shared.

But it was during that lowest point that JoyRx Music walked into the room.

“A young man in a purple shirt with a ukulele asked if he could play for Colton as he lay in his coma. Ever so softly, the young man strummed and sang. It was a simple song and a simple action, but it gave us hope,” said John. “Hope, when we had none.”

John shared the powerful story of his family during our annual gala in 2016. You can watch those heartfelt remarks now:

The whole family recently enjoyed a trip to the Caring Cabin as part of JoyRx Nature in March 2024, solidifying for John the importance of connection, empowerment, and joy.

“We felt an unbelievable amount of reverence and gratitude for the experience,” said John. “It was nothing short of moving to be supported in such a way. The walk to place our stone was a lifetime experience. We felt honored to be amongst the hundreds of families who have been served by Children’s Cancer Association.”

Today, nearly twenty years after that low point in the hospital, John is an avid supporter of Children’s Cancer Association, having served on the Board of Directors from 2016 to 2019, and currently serving on our PNW Leadership Council.

Beyond serving in a leadership role, John is a steadfast supporter of our programs through our events and fundraising initiatives. As a golf professional out of Oregon Golf Club (formerly) and Willamette Country Club (currently), he’s been instrumental in establishing our golf events throughout the northwest.

Throughout it all, John remains a humble and extraordinary supporter: “I will never be able to pay forward the support I have received from Children’s Cancer Association. But I certainly will try!”

We think you do and far more, John. Thank you for being a Luminary.

*John Grothe and his son Colton (photo courtesy of Children’s Cancer Association)*

September 18:
Andy Lytle

As the people who work with Andy know so well, he does everything with a huge smile, a hug for anyone he meets, and plenty of pure joy in his heart.

Simply put: Andy Lytle is a remarkable person.

Andy Lytle retired from the Board of Directors in 2022 after serving an amazing seventeen years. During this time, Andy served on the Board's Finance Committee, Executive Committee, and Capital Campaign Committee, providing deep and strategic leadership, particularly as Board Chair from 2011 to 2018.

During Andy’s tenure, he and his extended family and friends have made a historic impact on Children’s Cancer Association. It’s hard to sum up the full scope of everything Andy achieved by sharing his support.

But here are a couple of reasons that we think exemplify his kind heart and generous spirit:

Each year during the holidays, Andy and his family would sponsor a JoyRx-served family and deliver gifts, surprises, and holiday cheer to the family.
Andy attended every annual gala during his tenure, bringing his family and friends, donating incredible auction packages, and sourcing hundreds of cases of delicious wines for our events over the years.
Every August, he would tear up the fairway, leading a team each year in the CCA Invitational, one of our celebrated golf tournaments.
As an early investor in the Alexandra Ellis Caring Cabin, Andy believed in the power of nature to help families feel connected, supported, and joyful.
His belief in the power of music motivated him to invest and support our expansion efforts in Austin, Texas, leading to an eventual hub office and in-person delivery in several hospitals throughout Austin.

“Volunteer leadership, when done correctly, is a significant investment,” said Regina Ellis, our founder. “Of time, of resources, of passion and energy. It’s not easy, and it’s not always even fun — it’s a commitment that requires a deep understanding of one’s why. In his nearly twenty years of contribution at our organization, Andy is a bright shining example of what it means to lead.”

And for Andy, the answer to any question was simple: If it helps the kids, then let’s do it.

Perhaps that’s why it’s easy to see the impact of his contributions — supporting families, attending events, and dedicating thousands of dollars to JoyRx programming.

“Andy doesn’t just show up. He demonstrates leadership in all ways,” said Regina.

In honor of Andy’s unwavering commitment, dedication to Children’s Cancer Association, and incredible leadership and ambassadorship, we created the first Board Member Honorarium Award in our history:

The Andy Lytle JoyRx Culture Award is presented annually to an employee at Children’s Cancer Association who best embodies the values dear to our organization. Nominated and voted upon exclusively by staff peers, this award represents the most coveted employee recognition within our organization.

“We have established this award because no matter how large we grow or how far we expand, our culture remains what makes Children’s Cancer Association what it is,” said Regina. “And thankfully, Andy has been a tremendous part in building that culture.”

*Rosemary Culliver, Regina Ellis, and Andy Lytle at our annual gala in 2017 (photo courtesy of Children's Cancer Association)*

September 17:
Janice Olson

As a Pediatric Hematologist/Oncologist at Children’s Cancer and Blood Disorders Program, Randall Children’s Hospital, Janice Olson knows the devastation of cancer and its daily impact on families. Her commitment to this work is extraordinary, and Janice uses her compassion to create hope and joy for the children she works with.

“She is a conductor of hope,” our founder, Regina Ellis, said. “She has been such an advocate for our programs because she’s seen them in action.”

Throughout her tenure at the hospital, she stood in the hallway and championed JoyRx Music teams passing room to room with their instruments. She’s offered countless tours to community advocates to see the power of music in action. And she does it all with a smile and with unmistakable joy.

“She is brilliant and kind and soft and compassionate,” said Regina.

*Dr. Janice Olsen at the clinic (photo courtesy of Dr. Olsen)*

Even with the demands of her day-to-day work, she always takes time for Children’s Cancer Association. She’s been instrumental in being both a champion for our programs and a thoughtful, essential strategic partner — offering feedback on how we can grow stronger, what’s going right, and when we have an opportunity to improve.

“She’s the true definition of a leader,” said Regina. “A Joy Leader.”

Beyond her support in a professional capacity, Janice is also a personal supporter of Children’s Cancer Association. She shows up for us, speaks on our behalf, meets our board members and community leaders, and attends fundraising events — all in service of educating and bringing awareness.

“She is dedication,” said Regina.

For Janice, though, that admiration is mutual.

“I saw that [co-founders] Regina and Cliff were fiercely dedicated,” she said when asked why she supports our organization. “Not only to honor their daughter’s memory, but to recognize and build guide ropes over some of the most overwhelming chasms that our medicines could not bridge. The focus on joy was something that felt unique to me and necessary for children to not just survive their disease, but to thrive and grow even in the face of hardship.”

For Janice, it was all about helping to build resilience for hospitalized children. Music was one of the key early features that caught her attention, she says.

While her favorite music changes day-to-day (or mood-to-mood, she says), she has a soft spot for Bach, Bobby Darin’s and Frank Sinatra’s swing and Big-Band hits, Vince Guaraldi’s jazz piano or Wynton Marsalis’ bell-like trumpet takes on Vivaldi, and Purcell, Coldplay, Sting, Boz Scaggs, and flamenco guitar…

“I definitely cannot decide,” she said with a laugh.

Thankfully for her, there are quite a few of those genres and artists in our JoyRx Music Specialists’ repertoires — so hopefully she gets to hear some music she loves too, when she’s working with children in the hospital.

In addition to music, there are many things that bring Janice joy, keeping her motivated:

“Watching the world walk by from the vantage of a sidewalk café in a sunny Mediterranean city,” she said. “Nailing an unusual diagnosis that I can actually do something about! Sitting around a firepit or near a pool or on the beach or around the holiday table with my siblings, their spouses and children, my husband and my children — to share thoughts, memories, and experiences. Hitting every note in a difficult piece of music when performing with my choir. Watching a lazy river or a bubbling creek pass me by on a hot day from the shade of a big tree.”

Beautifully said, Janice. It’s no wonder to us that she’s an inspiration not just to our staff, our families, and the children she serves, but to the broader community. As a true Luminary, she is a shining example of how we can use hope and joy to create real positive change in the world.

September 16:
Grant Hammersley

Nobody knows the power of community quite like Grant Hammersley does. After all, he’s the board member who, in the early days of Children’s Cancer Association, created an engaging way to get his golf community involved to raise funds for JoyRx programs.

What became of that simple idea was sixteen years of the CCA Invitational: an impactful and celebrated golf tournament and fundraiser for JoyRx programs.

As the founder of CCA Invitational (originally called the Children’s Pro-Am), Grant singularly harnessed his event expertise at Opus Agency and his strategic acumen to chart the future of golf at Children’s Cancer Association, bringing the West Linn golf community to our family of supporters. What started as a simple tournament bloomed into a celebrated golf tournament, eliciting support from corporate sponsors and golf enthusiasts.

“CCA Invitational benefited us in such beautiful ways,” said Regina Ellis, our founder. “Grant and his family would tell their personal stories about cancer and the value of giving back. He led a great deal of work and harnessed a great deal. He put this massive event together for the love of kids and families.”

Building off that foundation and momentum set out by Grant Hammersley, the CCA Invitational has raised nearly $4 million since its inception in 2008.

For Grant, that combination of the love of philanthropy and the love of golf was an easy one.

“Everyone has a personal story, a brother, mother, child, or friend, who’s affected by cancer or serious illness,” he said. “I’m honored and proud of our community for their support of Children’s Cancer Association; I never dreamed we would raise millions of dollars and have such a powerful impact.”

Beyond his spearheading of this beloved event, Grant has been a personal supporter of Children’s Cancer Association for years, attending events faithfully and contributing to special appeals and fundraising solicitations. With a generous heart, Grant never forgets the importance of giving back.

“Why do I support? Because joy matters for these kids. You never know when you may need Children’s Cancer Association at your side,” he said. “And if I’m in a position to support them, to make a child never have to question what it means to be a kid, then I’m doing something right in my life.”

As a man who understands the importance of joy for these families, it’s no surprise that Grant himself is a family man, too.

“My family brings me joy,” he said. “I attribute my years of success at the helm of the CCA Invitational to them and their lifelong support of me and the things I hold dear. I am a lucky and grateful man.”

*Opus Agency Vice Chairman, former CCA board member, and tournament founder Grant Hammersley speaks at the 2016 CCA Invitational (photo courtesy of Children’s Cancer Association)*

September 15:
Mark & JJ Aalto

Mark and JJ Aalto are a force to be reckoned with. Proudly standing as #TeamAalto, these two powerhouse supporters are ongoing champions of Children’s Cancer Association.

It’s no surprise, then, that they’ve been some of our staunchest supporters at our annual gala over the last few years. They’re always quick to RSVP and always promise to bring large groups alongside them to share the joy and spread awareness.

Mark and JJ know the power of joy, whether it be enjoying nature—

“Our favorite place in nature is Central Oregon. We love the smell of the ponderosa in the summer, the hiking, the mountains, the rivers, and the beautiful trees. The peace and solitude amidst the immense grandeur of the land, the awe we experience when beholding pristine mountains amidst a high desert landscape.”

— which must be why they’re such avid supporters of JoyRx Nature and the Alexandra Ellis Caring Cabin.

*Mark & JJ Aalto at our annual gala in 2017 (photo courtesy of Children’sCancer Association)*

Or enjoying the calming power of music—

“Music brings us joy. The gift that others share through their voices and through instruments they are able to shape to reflect our hopes, our visions, and our futures.

Music lifts our senses and helps us to be transported and work through feelings. It can feel like an old friend, can propel us forward, or inspire us. Music helps us feel connected and understand that we are not alone. It surprises and delights. Music brings joy. Music heals.”

As advocates of Children’s Cancer Association, Mark and JJ have committed hundreds of thousands of dollars to the organization and used their extensive networks to help further our mission by introducing new friends and champions to the power of joy.

And when they aren’t attending our events to help raise critical funds, Mark serves on our PNW Leadership Council, and JJ volunteers throughout the year, dedicating their time and energy to our mission.

“We support Children’s Cancer Association because of the hope, support, and joy it provides families at a crucial time of need,” Mark explained. “Light to combat darkness, joy to counter pain. We see the impact and the healing that JoyRx programs provide daily. We are continuously inspired and moved by this amazing organization that started in Regina’s kitchen thirty years ago.”

Simply put, he says, “You stand in the storm with families and provide moments of joy and light to them.”

Mark and JJ, your enthusiasm and delight in sharing the power of joy with children in need are simply inspiring. Thank you for being true Luminaries.

September 14:
Jeff Paustian

When asked about Jeff Paustian, Regina Ellis, our co-founder, responded immediately: “He’s an extraordinary human being.”

Introduced to Children’s Cancer Association through his wife and their family’s personal experience with cancer, Jeff was committed to finding an organization to support that he could feel truly inspired by.

When he learned about the JoyRx programs, he knew he’d found the right organization.

“He came into my office like ‘Hey, I want to get involved,’” Regina recalled. “He asked, ‘What impact can I make?’”

And the rest was history.

From there, Jeff leveraged his extraordinary financial acumen and incredible passion to help Children’s Cancer Association reach more children in Oregon and across the country through JoyRx Music, Mentorship, and Nature programs. As co-founder and CEO of JGP Wealth Management LLC, Jeff knows his stuff.

Over the years, Jeff has connected us with his extensive network to create exciting event fundraisers for us, has served on our Board of Directors, and reviewed our investment and reserves as our resources grew as part of the Board Financial Committee.

“He’s a really strategic partner in terms of investment and business opportunities,” Regina said. “And he also got his family involved. His children had time in our office, volunteering. It became a whole family affair.”

And it’s true. Today, the legacy continues with Jeff’s son, Will, now serving on our Board of Directors, fueled onward by his family’s commitment to philanthropy and volunteerism.

“Jeff is the thread that ties so much here together,” Regina said. Then added with a laugh, “A purple thread, of course.”

His commitment remains as strong as it was the day he walked into Regina’s office, too.

“I support Children’s Cancer Association because of the difference we make in the lives of those served,” he said. “The joy, the hope, the comfort, the love… we get to share that with seriously ill children and their families.”

It ties in well with what brings him the most joy, too.

“Doing what I love with the people I love,” he said simply when asked. When he isn’t jamming out to Pearl Jam or hiking a trail to relax, that’s what it always comes back to for him: Finding joy and sharing that joy.

A purple connecting thread, indeed.

*Jeff and Molly Paustian with founder Regina Ellis at our 2011 gala (photo courtesy of Children’s Cancer Association)*

September 13:
Heidi O’Neill

As a longtime Nike leader and generous supporter of the Children’s Cancer Association, Heidi O’Neill has been a champion of JoyRx programs for years — and we are so honored to have her support.

Through her support, she brought together brand leaders from her team to help craft our brand identity and positioning. At a time when Children’s Cancer Association needed to differentiate our unique perspective in pediatric healthcare, Heidi stepped forward to demonstrate our work and spirit:

“We Deliver Joy.”

This brand work has stood the test of time and continues to inform our evolving brand identity through national and regional expansion. At our core, we are a joy-based and joy-forward organization. Heidi and her team helped us harness the language to express that.

Regardless of the project she undertakes, Heidi maintains an unwavering commitment to that mission. Her devotion to Children’s Cancer Association is no different. Working alongside Clare Hamill, the founding and current board chair of the Board of Directors, she has demonstrated exceptional leadership not only at Nike but also through her leadership gifts to us, enabling us to create sustainable and expansive changes in our JoyRx programs.

As a strategic supporter of the organization, Heidi has dedicated her time, expertise, insight, creativity, and resources, making her a true Luminary. Thank you for your leadership and generosity, Heidi. Our programs would not be what they are today without you — together, we can prescribe joy to all children who need it!

*Founding & Current Board Chair Clare Hamill with Heidi O’Neill and guests at our 2017 gala (photo courtesy of Children’s Cancer Association)*

September 12:
Geoff Cottrill

When asked to describe Geoff Cottrill, many of those who have worked with him describe him as the kind of leader who helps them strive to do their best work.

This much is true with his support of Children’s Cancer Association, too. As an encouraging, thoughtful, and appreciative leader who sets high standards for all those around him, Geoff has brought his creative freedom and encouragement to bettering our marketing outreach over the years.

It makes sense, of course. As a marketing leader for brands such as Coca-Cola, Nike and Converse, Starbucks, Top Golf, and Proctor & Gamble, Geoff is an expert in helping the world connect and grow.

Through Geoff’s insights and support, he helped forge a relationship with Converse to help fund our first music cart and music programming at Boston Children’s Hospital.

Our JoyRx Music Carts are a mobile storage system designed to house instruments for children during their hospital stays. Each cart is filled with a variety of musical tools — ukuleles, keyboards, drums, egg shakers, and more — for kids to choose from. When visiting the hospital, our music specialists visit each child's room, asking if they’d like to enjoy music that day and what type of experience they’d like to have.

Kids and teens can choose to watch a live music session played just for them, request a specific song, engage in a sing-along, participate in music lessons, or grab an instrument to play along — whatever feels right and brings Joy to them in that moment.

For Geoff, that moment of interaction is what drives him to champion Children’s Cancer Association:

“I support because of the wonderful work they do; their commitment to bringing joy to children; and for the people behind the organization who have dedicated their lives to helping bring joy to these children.”

When he isn’t helping us in our mission to empower sick kids to feel like kids again, he listens to his favorite music (Radiohead, Clairo, The Beatles, The Rolling Stones) or enjoys being on a boat on Cape Cod Bay or Nantucket Sound.

“In the sunshine, listening to great music, while fishing… and normally not catching anything,” he said with a laugh. “That’s why they call it fishing and not catching.”

We are so grateful for you, your joy, and your creative vision, Geoff!

*Geoff Cottrill, marketing leader (photo courtesy of Geoff Cottrill)*

September 11:
Susan Sherwood

As a certified Child Life Specialist at OHSU/Doernbecher Children’s Hospital, Susan Sherwood has been a key partner to Children’s Cancer Association for decades.

When asked why she supports us, she said, “Because over the years, I’ve been lucky enough to see firsthand the impact your programming has on kids and families.”

In fact, Susan supported Alexandra Ellis as a child life specialist during her treatment and joined the very first advisory committee launching Children’s Cancer Association. Truly, Susan has been with us every step of the way. As someone on the front lines in the hospital, helping children facing critical illnesses, she’s seen the before and after with JoyRx programs.

*Susan and her family enjoy a hike together (photo courtesy of Susan Sherwood)*

“The music program in particular has a huge presence on the inpatient unit,” she said. “And they are really part of the ‘team’ that helps support these patients.”

Becoming an essential part of the pediatric care teams that we partner with is what JoyRx programs are all about — incorporating joy and connection into the day-to-day experience of seriously ill children. Just as Child Life Specialists focus on helping young patients positively cope with their medical experience and have graciously woven JoyRx programming into that experience for families as one tool in their toolbelt, we’re here to help them foster the mental and emotional well-being of children. None of us can do it alone!

Susan has been a tremendous advocate for our presence in Doernbecher Children’s Hospital. And she’s no stranger to the power of music. Her favorite musician? “Billy Joel,” she said. “Lots of history with his music and love for the piano. He’s on my bucket list to see him perform again. I feel very nostalgic listening to his music.”

Understandably, she knows the power of a favorite song to make a dark day feel a little brighter.

Besides that, what else brings her joy?

“Helping others,” she said. “Good food. Nature. Dancing. Peanut butter and chocolate.”

A very good list! Thank you for all your support, dedication, and kindness, Susan. We are so grateful to work alongside you and your incredible team!

*Susan seizes the day! (photo courtesy of Susan Sherwood)*

September 10:
Rusty Nelson

Staff at Children’s Cancer Association are always happy to see volunteers walk through the door, but there’s one volunteer in particular who truly stands out as the embodiment of joy.

Rusty Nelson has been volunteering with us for nearly fifteen years and, according to him, there’s no end in sight. In his time as a volunteer, he’s befriended just about everyone on the team, attended numerous events, and dedicated more than ONE THOUSAND HOURS of his free time in support of the children and families we serve.

“The joy I get from Children’s Cancer Association is a lifetime supply,” he said. “A full tank of joy! Some people volunteer, and then they go home. But for me, being here has changed my life in every way possible, in the best ways possible.”

When asked to describe Rusty, the response around our office is unanimous: “He’s the best guy around!”

And it’s true. No matter the department or role, long-serving employees and new employees all know Rusty’s name, and most have a fond memory of their first meeting with him, an interaction during an event, or a standout highlight of his interactions with kids.

“It all comes back to joy,” said Rusty. “That’s my favorite part. And as long as I’m alive, I’m going to be helping Children’s Cancer Association in any way that I can.”

Rusty, we can’t begin to thank you enough for all that you’ve done. There’s no doubt in our minds that you are a true Luminary!

*Rusty Nelson in a vintage MyMusicRx tee (photo courtesy of Children’s Cancer Association)*

September 9:
Paul Hogan

As a former principal at Jesuit High School and longtime board member of Children’s Cancer Association, Paul Hogan has shared his support in walking alongside us as we’ve grown — and not just because of his role in supporting Walk for Joy.

Paul was first introduced to the organization through a young student who was Alexandra Ellis’s roommate in the hospital. This young teenager, Melissa, had an idea for how to engage students in supporting their peers facing cancer by getting involved in our mission.

Inspired by her desire to help kids battling for their lives, just as she had, Melissa introduced her high school principal to the organization’s founder, Regina Ellis. From those initial meetings came the idea of Walk for Joy.

*Paul Hogan kayaking this summer in his JoyRx tee (photo courtesy of Children’s Cancer Association)*

“Paul blew in the winds of passion and investment and opened the sails to create something very unique in our community,” said Regina. “Thousands of students walked miles and miles in support of their peers.”

Walk for Joy has taken on many forms over the years. It started as a traditional marathon run, then evolved into a music event, and later took on new identities through various outdoor activities, including walking, running, and even dancing.

Inspired by Melissa’s story and his family’s experience with cancer, Paul helped harness the energy of young adults and empowered them to realize their own potential in making a difference for each other.

*Walk for Joy 2023 participants take to the streets of Portland (photo courtesy of Children’s Cancer Association)*

He invested his personal time in creating this multi-school community event, which, during its run, helped raise over one million dollars for our programs. As a member of our board of directors, he also gifted his leadership and advocacy to our organization.

When we think of Paul’s impact, it’s clear to see: he is an architect of joy, dedicating his life to young people and helping them light the way for their peers facing cancer. We are grateful to build on that legacy.

September 8:
Elmer’s Restaurants

Today, we celebrate a Luminary known for its hearts full of joy: Elmer’s Restaurants. As a leader for joy, Elmer’s has been an instrumental force as one of our foundational Joy Makers in the Pacific Northwest.

Every February, Elmer’s hosts a fundraiser in support of Children’s Cancer Association. To support the initiative, Elmer’s invites its community to join them in becoming Joy Makers by purchasing paper Hearts of Joy in multiple locations across Oregon and Washington. These paper hearts are then taped to the wall of the restaurant, in really cool patterns, so everyone can see the impact and get inspired to join in on that wave of joy.

“We’re thrilled to continue our longstanding partnership with JoyRx programming,” said Jill Ramos, Vice President of Elmer’s. “We share a commitment to creating joyful experiences and made-from-scratch memories for families in our communities and are happy to support JoyRx programs with help from our team members.”

For Jill, working with our organization is a no-brainer.

“It’s an easy choice,” she said. “We’re both Portland-born (we love local!) and our mission and values are aligned. We are both in the business of supporting families making memories together and finding moments of joy.”

The fundraiser also sparks friendly competition among Elmer’s locations, with restaurants vying for the title of Top Fundraiser.

And it’s through that friendly rivalry and the generosity of the Elmer’s community that they’ve been able to raise over $350,000 since 2011. This campaign is supported at their ten Portland-area restaurants (Albany, Clackamas, Cornell Oaks in Beaverton, Corvallis, Eugene, Grants Pass, Gresham, Hillsboro, Mall 205 in Portland, Medford, Mill Plain in Vancouver, Parkrose in Portland, San Rafael in Portland, Tigard, and Woodburn locations to be exact), and we are so grateful for their continued dedication to joy, year after year.

At the center of it all, Jill remains a strong part of this partnership and is one of our longest-standing corporate partners. Thank you, Jill, and thank you, Elmer’s!

*Some of the wonderful Joy Makers at Elmer’s Restaurants (photo courtesy of Jill Ramos)*

September 7:
Fred Buckman Sr. &
Fred Buckman Jr.

This father and son duo have have such a large impact on Children’s Cancer Association through their generosity, volunteerism, and enthusiasm for the mission. Fred Buckman Jr. has recently joined our Board of Directors and continues to serve as co-chair of the Golf for Joy committee. Fred Buckman Sr. is a long-time champion and friend of Children’s Cancer Association, inviting peers to join him in leadership giving. Together, they’ve continued to build upon a growing legacy of giving joy by supporting us, and we simply would not be here without them.

“I do this for the kids,” said Fred Jr. “As we all should. Cancer stinks, and there is no world where the generations behind us should have to struggle with it.”

“It’s for the kids,” Fred Buckman Sr. agreed.

Their commitment to the children and families served by JoyRx programs has an impact beyond the Golf for Joy Tournament. Through their advocacy, we’ve been able to cultivate national relationships, connect with leaders in our expansion markets, and forge budding partnerships with the NFL Alumni Health Network and the Brain Health Institute, among other doors opened by the Buckmans.

Through their efforts, we’ve seen amazing year-over-year growth with Golf for Joy, most recently helping us break records — we raised over one million dollars this summer!

They inspire each other, too. Sharing personal connections to the JoyRx Mentorship program, we asked Fred Jr. about his most impactful mentor:

“It’s a tie between my dad and my wife,” he said. “Fred Sr. is pure heart and soul. If everyone had half his heart and soul, the world would be free of distress. And Christy, my life, is so kind and selfless. Her makeup is to care for those around her first, without once thinking about herself.”

Indeed, the Buckman family is a group of remarkable individuals, each committed to bringing joy to one of our most vulnerable populations.

“That’s what it’s about. Happy, laughing kids with no care other than having fun,” said Fred Jr.

We could not agree more, and we are grateful to the Buckman family for helping us empower seriously ill children to find their joy.

*Fred Buckman Sr. at the Golf for Joy Tournament in 2024 (left) and Fred Buckman Jr. a the Golf for Joy Tournament in 2025 (photo by PDX Photography, courtesy of Children’s Cancer Association)*

September 6:
Jon Cohen

When we reflect on individuals who truly champion the power of music, it’s easy to turn to Jon Cohen and see the impact he’s made on JoyRx Music. As one of our biggest and earliest partners in the music industry, he has been instrumental (see what we did there?) in helping establish us in New York City and Austin.

Teaming up with his longtime friend and business partner, Rob Stone, he launched FADER Media and Cornerstone Agency in 1999, leaving an indelible mark on the music industry. With that fervor and superstar insights, he provided resources, projects, and inspiration to keep moving forward decisively with our JoyRx Music model.

In Austin, he helped us gain access to the FADER Fort during SXSW, allowing us to transform the stage into one of the more popular venues during the festival. With a concert series geared towards families in the Austin area, it was a go-to spot for parents and their kids. The foundations he built during this festival ripple throughout our presence in Texas, both in-hospital and on the stomping grounds of popular music festivals.

Today, he serves on our New York City Leadership Council, providing support, imagination, and limitless ideas for how we can continue to serve more children in pediatric hospitals across the city and the country.

Watch & Listen: JoyRx Music Videos @ FADER Fort

*Jon Cohen, Co-CEO of Cornerstone Agency (photo by Ethan Holland, courtesy of Cornerstone Agency)*

September 5:
Dick Hannah Dealerships

Over the past 15 years, Dick Hannah Dealerships has helped raise more than $2 million for JoyRx kids, fueling programs that bring music, mentorship, and nature experiences to seriously ill children and their families.

This incredible impact comes through our long-standing tradition, the Ticket to Joy Car Raffle — held each winter in partnership with Dick Hannah Dealerships. Since 2010, they’ve generously donated a brand-new car each year, giving one lucky winner the keys while providing countless children with moments of joy during their most challenging times.

*JoyRx-served Wolfie Wolfie and his sister enjoy time at Dick Hannah Dealerships (photo courtesy of Children’s Cancer Association)*

In 2024, this tradition became even more meaningful when the raffle winner was a JoyRx family — a reminder that this event is truly rooted in community and connection. For them, it wasn’t just a car; it was a symbol of hope and brighter days ahead.

“Dick Hannah Dealerships is proud to continue our support of Children’s Cancer Association,” says Matt Berry, Head of Marketing. “As a family-owned organization, their crucial work aligns perfectly with our core values and commitment to community.”

We’re beyond grateful to the Hannah family (pictured above) and this dealership that Believes in Nice — and believes in JOY.

September 4:
Marsha Brockmeyer

Pop, rock, jazz — Marsha Brockmeyer loves it all. So, when she was introduced to JoyRx Music, it immediately struck a chord.

“I was managing the Community Giving program for Target at the time, and I went on a hospital tour to see JoyRx Music in action,” she explained. “It was such a profound experience. I literally cried tears of joy.”

*Marsha Brockmeyer with former Children’s Cancer Association staff member Abby Guyer at our annual gala in 2014 (photo courtesy of Children’s Cancer Association)*

From that point on, Marsha connected Target with Children’s Cancer Association, becoming a grant partner and major contributor. In retirement, her support and advocacy for our organization remain strong. She served on the Board of Directors for five years and generously shares her time, energy, and business resources as a training and leadership consultant.

Marsha has been instrumental in helping us build by engaging not just the families we serve but also major corporate partners. She has helped our staff build capacity and expertise in grant writing by sharing her insights and experience as a funder, thereby magnifying our ability to develop proposals for corporate partnerships and funders.

In 2010, Marsha and her late husband Gene generously decided to include Children’s Cancer Association in their estate plans. With the intention of this legacy gift, Marsha and Gene became inaugural members of our Founder’s Society. Gene passed away in 2013, but Marsha says she’s proud to continue to support our mission for both of them.

“For me, it’s a way of celebrating his memory,” she explains. “When I think about him, I think about his generous heart and the love we shared for Children’s Cancer Association. Now, when I give, I do it in honor of Gene.”

Thank you for your heart, guidance, and generosity, Marsha and Gene.

September 3:
Bronwyn Houston

When asked to describe Bronwyn Houston in just one word, remarkable is typically the first word listed.

As the President of Randall Children’s Hospital at Legacy Emanuel, our key partner, Bronwyn and her team have been instrumental in our JoyRx programs in action — advocating for, understanding, and welcoming the importance of joy in a pediatric healthcare setting.

Being a key part of the Randall Children’s Hospital team throughout our organization’s history, Bronwyn is the exact definition of a Luminary — someone who lit the way for our programs to thrive and champions innovative community partnerships.

Bronwyn isn’t just a key partner helping to facilitate our programs in the children’s hospital, but also a critical advocate for Children’s Cancer Association. In the early years, she helped us grow and respond to the needs of children, serving as a vital expert in the development of JoyRx programs. She was also a leader in the first research project we conducted at Randall Children’s Hospital, and continues to champion our development and program innovation.

Through her professional contributions to our extraordinary growth, her advocacy, and her collaboration, Bronwyn helped inform our vision for children to have access to joy during their healthcare journey, regardless of how dark some of their days may become.

Llama and a woman stand side by side. — Bronwyn Houston with a special therapy llama friend (wearing a fancy bowtie)!
(photo courtesy of Bronwyn Houston)

When asked why she supports Children’s Cancer Association, she said, “From the moment that I met Regina and the Ellis Family, heard Alex’s story, and learned the JoyRx mission to bring joy to seriously ill children and families, my head and heart were hooked. Being a partner to them is one of the greatest personal and professional privileges I’ve had in my life.”

We at Children’s Cancer Association are privileged to be partners with such an incredible leader. In the world of Luminaries, Bronwyn is a bright, shining, indelible light guiding our work.

And what brings her the most joy?

“My family and friends, our mini-Aussie, Jory, the smile on a child’s face, soaking up the beauty of this world through travel and hiking, sunshine, the sound of the ocean, THE Ohio State Buckeyes,” she said enthusiastically. “And when the Randall Children’s Hospital team makes magic happen for a child and family.”

We couldn’t agree more, Bronwyn.

September 2:
Paula A. Barran

“Paula is a quiet, thundering, remarkable force of intellect, compassion, and legal expertise,” Regina Ellis, our founder, said of her friend and mentor.

It’s the perfect way to describe Paula and her influence on Children’s Cancer Association. Paula was instrumental in guiding the organization in its early days (back when we had only four employees!) in developing the organization’s policies, guidelines, and strategy for human resources. She even helped draft the employee manual we still use today.

And since that time, Paula has continuously provided us with years of pro bono work as a founding member of her law firm, Barran Liebman, LLP. The firm is recognized throughout our region as a leading advocate for community partnerships in the non-profit sector, and we are grateful for their generosity and expertise. Serving as a personal mentor and friend to Regina, Paula played a vital role in enhancing the practices, skills, and acumen of our managers and team.

“She provided so much help,” Regina said. “She was an anchor for us.”

Two women stand side by side, smiling for the camera — *Paula Barran with Regina Ellis at our annual gala in 2017 (photo courtesy of Children's Cancer Association)*

Paula served on our Board of Directors from 2009 to 2023 and remains deeply dedicated and supportive of our mission and the community. In addition to serving on our board, Paula has acted as general counsel for the Portland Human Resource Management Association, served on the national advisory board for Super Lawyers, and is a Life Fellow of the American Bar Foundation — among other notable accolades.

It also helps that she truly believes in our mission and the power of music.

She admitted in 2015: “I’m a wannabee musician with zero talent and a patient guitar and banjo teacher.”

We’re ready to sing her praise even if she’ll be humble about it! Even if we can’t speak to her guitar skills (just yet), we know she is a shining beacon of talent and kindness.

“She’s a beautiful human being,” said Regina. “She is a quiet force of good at Children’s Cancer Association, in Oregon, and in the world.”

September 1:
René Zingarelli

Affectionately known as the JoyRx Grandma-in-Chief, René wears many hats for Children’s Cancer Association: Founding member of the Board of Directors from 1999 to 2004, proud five-time JoyRx Mentor, championing volunteer leader, and grandmother to Alexandra Ellis.

A young girl stands next to an older woman, smiling and waving. — *Mentor Rene and one of her mentees, Averie, in 2021 (photo courtesy of Children's Cancer Association)*

For thirty years, René has been a steadfast part of our story as one of our founding family members. She has played a crucial role in shaping our mission — from contributing to early program development through focus groups to serving on key initiatives, such as the JoyRx Mentorship 100 Match Challenge committee.

René’s commitment and care have touched every corner of our organization. In the early days, she jumped in wherever needed — addressing envelopes, helping plan celebrations of courage for children served, and championing fundraising efforts. Over time, she’s continued to make a lasting impact through her leadership and by playing a key role in creating a culture of generosity as one of our first donors.

As an active member of the community, René worked for 26 years at Clackamas Community College, serving in both faculty and Associate Dean of Extended Learning Services roles. In her retirement, she enjoys volunteering with numerous organizations, but we know that we are her favorite (and the feeling is mutual!).

When asked why she supports Children’s Cancer Association, her response was simple: “I STILL believe in the passionate work of bringing JOY to sick kiddos who, like my granddaughter Alexandra, get to have a life sprinkled with joyful moments amidst the challenging, painful ones. I know it made a difference for our family — and I know it continues to make a difference for the children they serve.”

The dream of Children’s Cancer Association started around the Ellis family kitchen table, and today, we are a national organization that serves hundreds of thousands of children every year. And in all that time, René has been a constant presence.

“Her selflessness as a community leader, as a mother, and as a grandmother has been so impactful,” said Regina Ellis, founder of Children’s Cancer Association, and René’s daughter. “Lots of people come in and volunteer for periods of time, but she has been consistent. She’s been at this table for thirty years.”

From the kitchen table to shaping the future of JoyRx, René has been a steady light of compassion, kindness, and dedication. It’s only fitting that we honor her as a Luminary — a true guiding light in our mission of joy.

Learn More About Our 30th Anniversary

The People Who Lit the Way for Joy in Our First Thirty Years

October 2: Kacy Smerke

October 1: Ed Burke

September 30: The Standard & Bob Speltz

September 29: Paul & Tasca Gulick

September 28: Kristin DuVal

September 27: Jeff Owens

September 26: Karis Stoudamire-Phillips

September 25: Gay Davis

September 24: Bill Grange

September 23: Tim Cooper

September 22: Terry & Brooks Newsom

September 21:Ashley & Matt McMullen

September 20: Ron Penner-Ash

September 19:John Grothe

September 18: Andy Lytle

September 17: Janice Olson

September 16: Grant Hammersley

September 15: Mark & JJ Aalto

September 14: Jeff Paustian

September 13: Heidi O’Neill

September 12: Geoff Cottrill

September 11: Susan Sherwood

September 10: Rusty Nelson

September 9: Paul Hogan

September 8: Elmer’s Restaurants

September 7: Fred Buckman Sr. & Fred Buckman Jr.

September 6: Jon Cohen

September 5: Dick Hannah Dealerships

September 4: Marsha Brockmeyer

September 3: Bronwyn Houston

September 2: Paula A. Barran

September 1: René Zingarelli

Community Investment Report for Fiscal Year 2024-2025 Available Now

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